Rachel's Miracle

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Rachel's Blog

How bout a little patience?

Posted on September 25, 2011 at 4:25 PM

There is nothing more I would want than for people to treat me as if this TBI never happened. But the reality is it did happen and I need everyone to understand the effects this injury has taken on me. For example when I’m out, it’s very difficult for me to physically keep up due to the weakness in my left leg and increased fatigue levels. But at the same time I don’t want to be a bother and ask whoever I’m with to slow down. Quite the dilemma!

Then, there’s the memory difficulties associated with TBI. People who aren’t aware of the severity of my injury, and in many cases even those who are aware, don’t understand how I can forget simple tasks. I know it’s very frustrating for all, but imagine how frustrating it is for me! It’s true that my memory has and will continue to improve and I have developed strategies to compensate, but the truth is my memory will probably never be “normal”; so maybe all I’m asking for is a little patience.

And one last thing: due to the weakness and lack of feeling and motor skills in my left hand please don’t ever attempt to shake that hand unless you want to be clawed!  :)  But in all seriousness, please don’t ever hesitate to offer some helpful suggestions… I’m all ears!

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4 Comments

Reply jplundine
12:53 PM on October 04, 2011 
Rachel - I just want to say how proud of you I am. I can't believe that I met you 5 years ago - obviously I've seen your amazing progress firsthand, but to read some of your posts, I am so proud of the advocate you have become - for yourself and for others with brain injuries and similar challenges. I am grateful to have the chance to know you and honored to have travelled some of this journey with you. Stay strong, girl! You make progress every day. Jenny L (your favorite memory book boss!)
Reply crawford.1@osu.edu
07:45 AM on September 26, 2011 
Rachel, I would imagine your frustrations are shared by many with TBI. Through your writing you help the rest of us understand the challenges you face. Has anyone ever told you that you are a very compelling advocate? I really enjoy your blog and website. David at OSUMC.
Reply Lori
09:54 PM on September 25, 2011 
I appreciate your willingness to educate others help them develop a great understanding of TBI. We often much assumptions about others without knowing what is really going on in their life. I remember a story by Stephen Covey about assumptions and judgement. I pasted it below:

One Sunday morning in New York he boarded a subway and everything was very peaceful. People were serenely riding to their destinations and there was plenty of room on the train. Very soon, however, all that abruptly changed. A man got on the subway with several children and their behavior was atrocious. The calm of the ride was immediately destroyed and the passengers were agitated and annoyed. The father sat down next to Covey and after a while Covey gently suggested that he should do something to take care of his out of control kids. The man looked up sadly and admitted that he should but it was extremely difficult for him. He said he was beside himself because his wife had just died an hour ago at a local hospital.

Everything changed in a moment. The passengers were anxious to console the man and his family. They were no longer worried about the poor discipline of the children. They readily understood that something much more important was going on here. The people on the subway car were transformed by suddenly seeing something in a totally different perspective. From anger they had almost instantly come to compassion. They understood things in a totally different light.

Initially they had made the judgment (and who wouldn?t?) that the father of these children was very wrong. They may even have concluded that the father wasn?t a very good father. They looked at something and drew their own conclusions. Judging is a pretty easy thing to do. Many of us may find that we fall into the same trap. We see something and assume the worst. Somebody makes a mistake or even forgets something and we believe the person has deliberately tried to hurt us or offer us a slight. Often enough, nothing could be further from the truth.

The problem is that our humanity gets in the way and sometimes our pride. We want things our way and are very willing to be demanding and even unpleasant with other people if things don?t go the right way for us. We can tend to make up our minds without knowing the facts. Sometimes our imaginations are just a little over developed and they see things that are not really there. We can be a little too quick in the judgment department.
Reply dkdeangelo
04:55 PM on September 25, 2011 
You are amazing, wonderful, kind--and an inspiration to so many. I know that without the TBI your life still would've taken you on a path that would allow you to touch the lives of many others. Because, that is your spirit. As I read (and fully 'get it') your latest post, my thoughts were drawn to you--and the patience (and maybe permission) that you should be reminded to give yourself. We don't expect others to be mind readers, but, we can say "I need to sit for a bit"...without 'giving in' to the injury, without using it as a reason to do or be less than who we are, without feeling as though we are face of pity. It is okay. This is the newer normal...the normal that comes with memory challenges. tiredness in unexpected places, and the occassional clawing when going for the left hand! This newer normal has also brought with it such perspective, new friends, support, encouragment...and so much love.

I thought you'd find it interesting to know that this post is coming from my bed as I am a little over a week post-op from my cranioectomy to help with the Chiari Malformation. Brain surgery isn't easy :) But it makes me so happy to know you, to know your story, your challenges....and most importantly--your continued triumphs!!!!

Live Well, Laugh Often, Love Much,
Kim

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Welcome and thank you for visiting Rachel's Miracle.  An inspirational, heart-warming story of Love and Friendship, Faith, Hope and RecoveryThe purpose of this site is to provide hope to brain injury survivors, caregivers, family members, friends, or anyone else affected by this life-changing injury.

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